[Systemic Capillary Leak Syndrome (SCLS) is one of the rarest diseases in the world. It is estimated to affect only a few hundred people globally, roughly 1 per million, possibly even fewer. Statistics like these sound abstract — until you become one of them. I am one of those people. I was diagnose...

I hope you found relief, nobody should feel left out and alone. I also have a rare disease and in my country Greece they dont no anything about it. Is always a risk. Keep on walking... [edit] Merci pour votre soutien, merci également de traduire vos messages car ce forum est exclusivement francophon...

I am a 46-year-old woman residing in Thessaloniki, Greece, diagnosed with Systemic Capillary Leak Syndrome (SCLS), a rare, chronic, and potentially life-threatening systemic disease characterized by severe vascular hyperpermeability, intravascular fluid leakage, functional hypovolemia, and hemodynam...